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Protecting Your Privacy in Human Research
Why Do You Need to Know About Privacy?
What being in the study would mean for you
Many studies collect private information
Protection When Collecting Your Information
EXAMPLE: Ask you to answer questions on a computer or tablet without giving information that can identify you
Protection When Storing Your Information
Encryption
Use a code or reference number
EXAMPLE: Information collected to study the spread of COVID-19 could be used to study which patients would be most likely to end up in the hospital
Intro
Data brokers
What is data protection?
Challenges for human rights in the digital age
Collection of personal data by governments
Mechanisms at the international level
Surveillance in Kenya
Data protection in Kenya
What can human rights defenders do to protect and strengthen privacy and data protection?
Engagement at the national and regional level
Data Privacy Week 2024
John Elliott
Sectoral Privacy Laws
State Privacy Laws
What Trends Have You Noticed in the Past 12 Months in this Data Privacy Space Is It a Big Thing
Safeguard Reproductive Rights and Health Care Data
What What Can People Do To Influence the Development of Privacy Legislation in State Level on a Federal Level
S the One Thing That Individuals Can Do To Be More Privacy Aware
What is the role of data privacy literacy in higher education?
How do we demonstrate to our data subjects how their data should be handled?
Could you talk about the relationship between cybersecurity and privacy?
What is the difference between privacy and cybersecurity?
What are the benefits of having a privacy policy?
What are the benefits of using a consent form?