動画検索
関連広告
検索結果
Welcome
Building Partnerships and Relationships with Care Teams
Q&A from the audience
What would you like to see the AAC accomplish in the future?
Mentoring Advisory Board
How does the matching process work?
What's your impression of working at the CF Foundation?
BreedCon
What was your favorite part of BrainCon?
Conclusion
Mary Dwight provides opening remarks and introduces the panelists.
Monica Bryant provides her insights into the benefits of expanding paid family and medical leave for vulnerable populations during COVID—19.
Katie Fielding shares her story, and many others from the cystic fibrosis community, providing examples of how people in the CF community would benefit from expanded paid family and medical leave.
Panelists answer a series of questions moderated by Mary Dwight.
Katie Fielding details what expanded paid leave would mean to her and her family.
Panelists answer the final question, “What are the ramifications of removing safety nets, such as employment, during COVID-19 and as states begin to reopen?”
Dr. Brawley reflects on the question, “How do we avoid people dying?” His answer: “We need to support people who are the most vulnerable.”
Infection Research Initiative Update with Dara Riva, M.S., Director of Clinical Research Awards
Research Highlight: Nontuberculous mycobacteria (NTM) with Stacey Martiniano, MD, Children's Hospital of Colorado
Research Highlight: Bacteriophage Therapy in CF with Jon Koff, MD, Yale University
Research Highlight: Aspergillus in cystic fibrosis with Gina Hong, MD, University of Pennsylvania Perelman School of Medicine
Welcome
What are your thoughts on the CF Foundation's mission?
Simplify Study
Opportunities for CF Research Volunteers
What research is a priority in the future?
What are your thoughts on partnered research?
How do you decide which CF clinics to pick when enrolling for clinical trials?
How can I get more involved?
Closing Remarks